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Learn about a painful disease that affects women and has no effective treatment

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I began experiencing significant menstrual pain at the age of 14, and I relied on hot compresses to get through the day while I was at school. The physicians didn’t know what was wrong with me prior times when I was ill and kept at home, and they assumed that I had appendicitis because of the symptoms.
After ten years of suffering, the medical professionals eventually determined that I had endometriosis. This did not lessen my problems, but I was aware of them after numerous consultations with medical professionals that this illness is inexplicable, its diagnosis is challenging, as is its treatment, and a person may have it for the rest of his life.
There are tissues in various parts of a woman’s body that are similar to the tissue lining her uterus, and this condition is known as “endometriosis,” which affects women and is linked to the menstrual cycle. These tissues can be found in the fallopian tubes, pelvis, intestines, vagina, small intestine, and occasionally even the lungs, eyes, spine, and brain. The only organ in the body without these tissues is the spleen. This illness manifests as acute pelvic discomfort and ongoing exhaustion.
In the world, this illness affects 176 million women. One in ten women of childbearing age in the United States and many other nations is afflicted by this illness. Despite this, approximately six million dollars are set aside each year to support his research, compared to, for instance, more than fifty times that amount for research on sleep problems.

According to a study conducted in ten different nations, the average annual cost of this illness for one patient is 9,579 euros or around 26 euros per day. This does not include the potential expense of infertility or the risk that the pain itself will expose patients to other issues.

According to Katie Vincent, an expert in pain research at Oxford University, “we have evidence that exposure to severe pain affects the central nervous system, altering a person’s response to pain in the future and making them more susceptible to other chronic pain disorders.”

Acute discomfort in the pelvic area is the most noticeable symptom for those who have disease symptoms, yet many infected women go their entire lives without experiencing these symptoms, adding to the disease’s mystique.
Despite some disagreements, the Czech scientist Karen von Rokitansky’s microscopic discovery of the illness “endometriosis” in 1860 served as confirmation of the disease’s earlier discovery. Since ancient times, similar symptoms to the disease have been documented. The ancients called these symptoms “hysteria” of women because the Latin word for “womb” is the root of the English word hysteria.
According to a review of the medical literature on pelvic discomfort, many cases of what was most certainly “endometriosis” were mistaken for hysterical fits. According to the study, the original definition of hysterical contractions back then generally involved women falling to the ground in a particular way and may have been brought on by severe abdominal discomfort.

Due to the disease’s ambiguity, lack of a known treatment, and potential ten-year diagnosis time, misconceptions about it are still frequently expressed today.
Three women who had been diagnosed with this illness and who were either in their twenties or thirties verified that they had been misdiagnosed and that their symptoms had been overstated when I spoke to them.

Alice Bodenham, 31, claims that no doctor in a clinic or hospital has ever addressed or inquired about an “ectopic uterus,” but they have all misinterpreted it or assumed that I am producing symptoms.
Even though pain is the initial sign of endometriosis, ignoring women’s agony contributes to the issue. I personally experienced this when I was subjected to extreme pain during an internal ultrasound. After telling the doctors about my experience, I discovered that they had written a statement that read, “The patient felt mild pain during the x-ray treatment.”
The patient is labeled “delusional” since the condition cannot be diagnosed without a piercing scope and without the doctor accepting her description of the symptoms!
40% of the 2,600 endometriosis-afflicted women assessed in a British government study had 10 or more doctor visits before receiving a referral to a specialist. Before addressing their pain seriously, Bodenham and Crystal Rodriguez, both 31 years old, repeatedly passed out.
Caitlin Conyers, 24, who blogs about my endometriosis diary claims that the physicians didn’t believe her when she claimed to have the disease’s symptoms. “I ended up visiting an emergency clinic three years ago. I did my research first,” she claims. Google the various causes of my feelings, including endometriosis. I mentioned it to the doctor, who categorically stated that this is not the underlying cause. Despite everything I told him about the terrible pain I experienced during my period and other abdominal pain, he did not believe me!
The University of Oxford researcher Kitty Vincent affirms that this is due to the fact that women, not males, complain of pain. whenever he missed two days per month!
The fact that the condition is not caught early by medical professionals, particularly when the tissue lesions are minor, only serves to exacerbate matters further. There is a lot of resistance when discussing menstruation, and the patient’s lack of awareness could further postpone the diagnosis. Two out of the three women I spoke to said that they had been warned to expect menstrual pain but that the realistic upper limit had not been specified by a family member or sex educator.
The efforts of activists and charities to increase public awareness of the disease appear to be having an impact. The Australian government unveiled a plan of action in 2017 to promote public awareness of endometriosis and provide 4.5 million Australian dollars for associated research. An advisory board has been made public in the UK.

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